Raising funds and awareness about bleeding disorders and Hemophilia of Indiana is the goal of the 4th Annual Hemophilia Walk, which will take place Saturday, September 22 at Fort Harrison State Park in Indianapolis.
Jeanne White-Ginder(mother of Ryan White) is Guest of Honor for the event, which is one of 23 such Walks taking place across the United States in 2012.
To register or for more information, visit www.hoii.org or call toll free 800-241-CURE. Walk-up registrations are welcome. All participants receive free park admission for the day, a stylish souvenir tee shirt, food, music, family entertainment and the opportunity to meet Jeanne in person.
Registration begins at 8:30 a.m., “Breakfast with Jeanne” begins at 9 a.m. Welcome and Remarks is at 10 a.m., and the Walk “steps off” at 10:30 a.m. National Presenting Sponsor of the Event is Baxter BioScience and Local Presenting Sponsors are Indiana Hemophilia & Thrombosis Center and General Hotels Corporation.
Jeanne carries on the crusade started by her son Ryan White, who was diagnosed as a child with HIV. Ryan had Hemophilia A and contracted HIV as a result of his treatment. “Ryan only had HIV the last few years of his life,” says Jeanne, “but he always had hemophilia.”Today, in addition to continuing Ryan’s efforts to end discrimination against people with HIV/AIDS, Jeanne works to raise awareness about bleeding disorders and the advances in research and treatments that we have seen in recent years.
Millions of Americans live with bleeding and clotting disorders. Hemophilia in particular can cause internal bleeding into the joints, resulting in pain, swelling and, if left untreated, permanent damage. More than ever before, improvements in care and therapy are allowing people with serious bleeding and clotting disorders to live better, fuller lives. But there’s more work yet to be done.
The proceeds of the Hemophilia Walk support Hemophilia of Indiana’s programs and services, education and awareness about bleeding disorders, and research to improve therapies and to find a cure. Organizers of the 2012 Walk hope to raise $100,000. Anyone interested in participating in the Walk is urged to register online at www.hoii.org or by calling toll free 800-241-CURE. Walk-up registrations are welcome.
Hemophilia of Indiana, Inc. traces its beginnings to the mid-1950s when families with children with hemophilia and other bleeding disorders banded together for support and advocacy. It became a chapter of the National Hemophilia Foundation in 1963 and was incorporated as a non-profit organization in 1972. Hemophilia of Indiana is affiliated with the National Hemophilia Foundation, the Hemophilia Federation of America, and Community Health Charities of Indiana. Today we serve more than 1,200 people and their families throughout the State of Indiana.